Over a decade ago, the US Congress voted against establishing an unique patient identifier in the US for every individual utilizing health care.
The Healthcare Information and Management Systems Society (HIMSS) is the healthcare industry’s membership organization exclusively focused on providing global leadership for the optimal use of healthcare information technology (IT) and management systems for the betterment of healthcare.
Developed by the HIMSS Patient Identity Integrity Work Group, the purpose of the Patient Identity Integrity White Paper is to identify the complex issues relating to the accuracy and completeness of electronic health data attached to or associated with an individual patient and the linking of all such data within and across systems. The paper discusses the critical business processes that must be in place to support and maintain the integrity of the data for quality of care, patient safety and cost management.
Download the White Paper here.
I was fortunate to be invited to this working group long ago and had provided some initial feedback on pseudonyms as the torch bearers of privacy.